Nora’s transplant has been scheduled for May 24th. She will be admitted to the hospital on May 18th and will get her lumen catheter in her chest for her Chemotherapy/AGT and a bone marrow aspiration and biopsy. On Saturday the 19th she begins her Chemo. On Wednesday the 23rd she undergoes total body irradiation (TBI) and the donor’s marrow is harvested from wherever in the world he is, and flown to NYC. Nora will get her transplant on May 24th. Her second birthday!
Shawn will be in the first week. We will both be in on her transplant day, and then we begin the weekly switch until she gets home sometime in September. Thank you to everyone signed up at lots of helping hands. https://marrow.lotsahelpinghands.com/c/656087/?sw=no My sister Rachael and I will be adding things we may need help with as we go along. Please keep up with Nora on her blog http://www.norasstars.wordpress.com we will be posting video and notes as we go. She wants to type her own story. If anyone wants to visit… please don’t… she cannot have any germs so the less people the better. We may be up to skypeing on days she feels well.
Nora has a centered-calmness, deeply rooted in faith, that comes out of her like light. I keep wrapping my head around the fact that this child not only missed first grade, but is going to miss her entire summer vacation and part of second grade. Yet she is so peppy! She has so much strength and such a great attitude. She knows exactly what is coming. The vomiting, diarrhea, hair-loss, headaches, feeling like she has the flu for a month, the isolation, and the possibility she may never give birth to her own child… and she is looking forward to the whole experience… She prays everyday for her own healing and for the healing of her friends. Yet she is completely OK that God has made her sick, she trusts Him completely. She completely amazes me.
We will keep you all updated as we move forward. Thank you everyone who has helped, or donated, we would have been lost (or bankrupt) without all of you! We are so grateful!
Keep praying for her, and us, for the next few months.
(Shawn, Maureen, Arik, Nora and Nugget)