Nora is doing well. Her platelets are normal, she is beginning to make blood, but she is still skirting around being neutropenic. She takes 21 pills in a day. 6am, 10am, 12noon, 2pm, 6pm, 10pm and 12midnight. She is getting used to waking up, taking a bunch of pills and going back to sleep. This is just how she has to do it and she has adapted nicely.
It has been just over a month from her transplant and she is really enjoying the Ronald McDonald House. There are lots of people here from all over the world with various diseases. They are all kids… so they all just get along and no one cares that she is bald, or that someone else is in a wheelchair, or someone else is blind. When they meet…
Nora: “What are you in for?”
Kid: “xyz disease”
Nora: “Huh. I have aplastic anemia and just had a bone marrow transplant… wanna play”
Nora is the social director as you can imagine. She is always dancing and starting some new activity. If some kid is standing on the outskirts she is always ready to pull them into the group. There was a little boy here who was like Arik, 8 years old, quiet and looking for someone to tell him what to do, Nora took no time at all to buddy up with him and made sure he was a part of everything. He didn’t want to leave to go home!
Nora and I spoke at a fundraiser for the House. Mike Farrel of Annaly Capital Management (Wall Street Firm) donated $330,000 to the house. We thanked him and told Nora’s story. She made a few grown men wipe their misty eyes with her matter-of-factness and giraffe eyes.
We have been coming together as a family every weekend. Arik, Nora, Shawn and myself are all together which is nice. June 24th was the 1st time since May 18th we were all together, and we are the lucky ones. There are a bunch of families from other countries that have been separated for months and months.
Arik and Nora were on Eyewitness News promoting the House and the “Weird Science” program. You can see the video here. http://abclocal.go.com/wabc/video?id=8723351
We thank you all for everything you have done. With financial support, toys, donating blood and especially praying for her. We are WAY behind on the Thank You cards and be sure that someday you will get one…
She is really doing well. Thank you for all that you do! Your efforts are appreciated. Please keep the prayers coming!
Shawn, Maureen, Arik, Nora and Nugget