Nora had a really tough week on her ATG chemo. The first day started with a fever, headache and a spike in blood pressure, the second day she had a nosebleed, the fourth day she threw up all day, the fifth day she had another fever and headache. The morning of her boost she also had a fever. They gave her an antibiotic called Zosyn, in less than 5 minutes, her eyes hurt and vision went blurry; her feet were tingling, her lips and hands swelled, she got a rash all over her body and she couldn’t breathe. The team rushed in stopped the antibiotic, gave her a steroid shot, Benadryl, Tylenol and hooked her up to oxygen. It was really scary but she fought through like a champ.
She got her stem cells at 4pm on July 29th and was a bit nervous. She is really hoping this time it will work but she is still worried about graft vs. host which makes her cry whenever she thinks about it, so we are always quick to change the subject. She said when the cells were pushed through her port the cells tasted like asparagus, cabbage and ginger. I wonder if her donor ate them for dinner the night before he donated!
Her donor, our superhero, donated a massive amount of stem cells again, enough for three transplants. The doctors gave her a double dose today. They have enough left over and on ice just in case she needs another boost in the future.
An hour after the stem cell transplant she started to perk right up. She started to get her sparkle again. The greyness under her skin is starting to fade. They will stop the Benedryl tonight and we will wait to see how fast she grafts.
Arik really wants her home. He has been sleeping in her bed and taking care of her stuffed animals, constantly asking when he can see her. I think he is the greatest brother in the world. This has been really hard on him and he has been wonderful. He has become so compassionate and empathetic toward other ill children… he is turning into quite a fine young man.
We have such wonderful friends and family who have been generous with their love, blood, time and money helping us get through this tough time in our lives. We are forever grateful. We love you all so much.
Please keep the prayers coming. Her counts are still vey low and she is still very susceptible to germs. She cannot have visitors except for Shawn and myself until she begins to graft. We hope and pray everyday that she begin to heal.
Love the Getchell’s
Shawn, Maureen, Arik, Nora & Nugget