About

I was born in 2005. I was sick on Memorial Day 2011. I went to the hospital on the 31st of May. They thought I had leukemia and cancer. Then they took my bone marrow and I didn’t have cancer. They thought I had a B12 deficiency. Then they took a bone marrow biopsy, lots of blood and swabbed my cheek. Then they knew I have Very Severe Aplastic Anemia. Which means my blood has T cells that are mad at my stem cells and they are fighting.

I did immunosuppressive drug therapy June 15th 2011. That didn’t really work. I had a bone marrow transplant on May 24th 2012. That didn’t really work. I had a stem cell boost on July 29th 2013. That didn’t really work. I am once again neutropenic. My Tcells are the strongest most powerful Tcells in history. I bet once they are studied they will find the cure for cancer in them.

I can’t have raw food. I can’t ride my bike. I can not swim in the bay. I need to wear a mask all day. I can’t even go to the library or playground. I cant swing on my swing upside down. I cant jump off my swing. I cant even see my friends. The only thing I can do is sit inside my house or the hospital all day and read books, play the wii, and draw.

I want this to be done so I can go to “Give Kids The World” I had to cancel my trip three years in a row. I really want to go to New York City to see the tree at Christmas with my family but I can’t go because of the crowds. 😦

I am tired of being sick. I just want a normal life.

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10 thoughts on “About

  1. Sweet, sweet Nora. You don’t know me, but I walked and stood with your mommy at Matty and Diana’s wedding 1000 years ago. While the sight of your sweet face and your many beautiful drawings make me smile, your story makes me sad, angry, confused and so sorry. You are one LOVED little girl, with people from every walk of life and corner of the world doing what they can to help you heal. It’s quite unfair what is happening to you, and you have every right to get upset about it. You have every right to your time in the sun. And the people who love you are doing everything they can to see to it that you will have it again. Hang tough little Nora. We all believe in you.

  2. Hi Nora,
    I am your Mom’s cousin, Peigi. I know I spell my name differently but that’s just me. My real name is Margaret which is also your great-grandmother Corrigan’s name. She gave birth to your late Grandfather Jimmy, on this day. My son, Dante, is also celebrating his birthday today. He said to say hello to you, and hopes you are healed soon.
    I’m coming to your blood drive tomorrow, and will bring you a story I wrote about an oyster. Did I tell you that peigi means pearl in Gaelic? Also, what noise annoys an oyster? You’ll find out the answer tomorrow when I come out to Hauppague. I hope all your dreams and wishes come true.
    Much love from your 2nd cousin-once removed,
    Peigi Vasko-Guerra

  3. Hi Little Nora

    You and I have never met each other. I knew your mom, aunt, grandma, grandpa, and uncle from the time I was a little older than you are. They can tell you funny stories about how I couldn’t dive. Still can’t. I just want you to know that you have made an impression on me and I think about you very often. I have a little boy who is almost your age and I look forward to the day you and my son get meet and play in a playground together. You are very loved and very special.

  4. Hi Nora:

    You and I have never met. I met your mom, uncle, aunt, grandma and grandpa when I was a little older than you are now. They can tell you a funny story about how I couldnt dive. I still cant. 🙂 I just want you to know that I think you are a very special little girl and even though we have not met, i think about you and your family very often. I have a boy who is a little younger than you and I look forward to the day you two can meet and go to a playground. You are very loved by people you know and people you don’t. P.S — I like your NORA SWIRL picture.

  5. Hi Nora:

    You and I have never met. I met your mom, uncle, aunt, grandma and grandpa when I was a little older than you are now. They can tell you a funny story about how I couldnt dive. I still cant. 🙂 I just want you to know that I think you are a very special little girl and even though we have not met, i think about you and your family very often. I have a boy who is a little younger than you and I look forward to the day you two can meet and go to a playground. You are very loved by people you know and people you don’t. P.S — I like your NORA SWIRL picture

  6. Hi Nora-
    You don’t know me but I am fighting Aplastic Anemia too! Keep fighting! I know you can do it!
    From one survivor to another!
    Kyle, 11

  7. Hi Nora, my name is Morgan. We have never met before, but I have heard about you! HAPPY BIRTHDAY! I’m Jewish, and for my bat mitzvah we are asked to do a good deed, for our community. I decided to host a Bone Marrow Drive! Your really inspired me to do something good for others. Hopefully, others, like you, will find a match too! Good luck with your surgery!

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