I was born in 2005. I was sick on Memorial Day 2011. I went to the hospital on the 31st of May. They thought I had leukemia and cancer. Then they took my bone marrow and I didn’t have cancer. They thought I had a B12 deficiency. Then they took a bone marrow biopsy, lots of blood and swabbed my cheek. Then they knew I have Very Severe Aplastic Anemia. Which means my blood has T cells that are mad at my stem cells and they are fighting.
I did immunosuppressive drug therapy June 15th 2011. That didn’t really work. I had a bone marrow transplant on May 24th 2012. That didn’t really work. I had a stem cell boost on July 29th 2013. That didn’t really work. I am once again neutropenic. My Tcells are the strongest most powerful Tcells in history. I bet once they are studied they will find the cure for cancer in them.
I can’t have raw food. I can’t ride my bike. I can not swim in the bay. I need to wear a mask all day. I can’t even go to the library or playground. I cant swing on my swing upside down. I cant jump off my swing. I cant even see my friends. The only thing I can do is sit inside my house or the hospital all day and read books, play the wii, and draw.
I want this to be done so I can go to “Give Kids The World” I had to cancel my trip three years in a row. I really want to go to New York City to see the tree at Christmas with my family but I can’t go because of the crowds. 😦
I am tired of being sick. I just want a normal life.